accessible designs for personal health records

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Usability Testing

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Usability Test Participants

Participant Recruitment

  1. Of the sixteen total participants, fourteen were recruited from a two organizations specializing in supporting the health and independence of people with disabilities. Two participants were recruited via the usability/user experience professional community. All participants were residents of the Philadelphia metropolitan area.
  2. Test participants were recruited to represent people with different disabilities (physical, visual, hearing, cognitive and speech) and in different living situations (residents of long term care, assistive living and independent living).

Participant Demographics

Gender (n = 16)

Female: 6
Male: 10

Age (n = 16)

Minimum: 24
Minimum: 66
Mean: 47

Living Situation (n = 16)

Resident of a long-term care/skilled nursing facility: 4
Resident in an assisted living/personal care facility: 2
Live independently in a house or apartment: 10

Frequency of Technology Tasks (n = 16)

Daily Weekly Monthly Every 6 months or so Never
Send or receive email 12 1 2 1
Send or receive text messages 10 2 2 2
Read news online 9 5 1 1
Shop online 3 2 3 4 4
Use social networking (Facebook, Twitter, etc.) 6 4 3 1 2
Participate in online forums 1 2 2 3 8
Access online videos, movies, TV shows, podcasts 7 5 2 2
Create or update a blog or website 2 2 4 8

Frequency of Health / Technology Tasks (n = 16)

Daily Weekly Monthly Every 6 months or so Never
Use the internet to find medical information 1 3 5 4 3
Use an online health record system connected to your healthcare provider 1 1 14
Use an online personal health record not connected to your healthcare provider 16
Use health apps on a mobile phone or tablet 1 2 2 11
Use other types of technology to manage your health (documents, spreadsheets, etc.) 1 2 3 10
Collect, store or organize paper documents associated with your health care 2 7 7
Email or text clinicians and others involved in your medical care 1 4 4 7

Participant Self Identified Disabilities / Assistive Technology Used in Test (n = 16)

Participant Self Identified Disabilities Assistive Technology Used in Test
Blind Screen Reader: JAWS (version 14)
Blind Screen Reader: JAWS (version 14) with Internet Explorer
Blind Screen Reader: JAWS (version 11) with Internet Explorer
Blind Screen Reader VoiceOver with Safari (OS X version 10.9.2)
Deaf No assistive technology (test was performed with American Sign Language interpreters)
Deaf No assistive technology (test was performed with American Sign Language interpreters)
Deaf No assistive technology (test was performed with American Sign Language interpreters)
Severe physical disability Mouth stick with Datalux Keyboard, Kensington Track Ball, On Screen Keyboard
Severe physical disability Dragon Dictate (version 11.5) with Internet Explorer and Plantronics headset
Severe physical disability Dragon Dictate (version 11) with Chrome and Plantronics headset
Severe physical disability Large Print Keyboard, Kensington Trackball
Mild physical disability Large Print Keyboard, Kensington Trackball
Cognitive disability No assistive technology
Severe physical disability, visual impairment Large Print Keyboard, Kensington Trackball
Severe physical disability, speech impairment Mouth stick with Datalux Keyboard and Mouse Keys
Severe physical disability, speech impairment Intellikeys Keyboard with key-guard, Left hand mouse, Mouse Keys

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A Collaboration Of:

  • National Center for Accessible Media
  • The Children's Hospital of Philadelphia - Research Institute
  • Inglis